I was just looking at the Trisomy18.org website and reading about the struggles and joys that parents have with their Trisomy babies. I remember writing to get support, answers, help. Now I read about new parents going through the same types of things Gregor and I went through while she was alive. And now I can relate with all the posts that parents sent after losing their child.
I am not sure what my point is really, except that I felt the need to write and say how much I miss my little girl. I had these grand hopes that Arrowen was going to be the trisomy kid that defeated all the odds. Even though she didn't make it, she did defeat so many odds.
She is always in my heart, coursing through my body and mind. She lives in my spirit, my soul. I love her eternally and hope there is a place again where we will be reunited.
I used to sing a song to her. I miss singing that song. It goes through my head, but the tune can't make it out of my mouth. It was:
Arrowen heroine of Bangkok.
Arrowen elfin of Bangkok.
A short song, but it means so much to me and sometimes she seemed comforted by it.